Organ & Tissue Donors

Latest research

Machin LL, Cooper J, Dixon H, Wilkinson M. Organ donation in principle and in practice: tensions and healthcare professionals’ troubled consciences. BioSocieties. 2021:1-21. doi: 10.1057/s41292-020-00219-z

Miller J, McGregor L, Currie S, O'Carroll R. (2021). Investigating the effects of threatening language, message framing and reactance in opt-out organ donation campaigns. Annals of Behavioral Medicine. In press 

Norton M, Moloney G, Sutherland M, Sargeant S, Bowling A. Hoping for life means waiting for death: Emotional anchoring and themata in media reporting on paediatric organ donation. Journal of Community & Applied Social Psychology. 2021: doi:10.1002/casp.2539

Siegel JT, Blazek D, McManus M, Alvaro EA, Crano WD, & Sanders M. (2021). Organ donation and Departments of Motor Vehicles: Multiple messages, implementations, and replications Health Psychology. In press

 

2021

Hyde MK, Lewis I, White KM. (2021, February 17). Young people’s views on how to encourage family discussion about organ donation. PsyArXiv doi:10.31234/osf.io/vpju4

 

2020

Blazek DR, Siegel JT, Tan C, Baumsteiger R, Cornwell J. Inducing motivational harmony to increase attitudes and intentions to register as an organ donor and engage in general prosocial behavior. Journal of Theoretical Social Psychology. 2020;4:205-217. doi:10.1002/jts5.75

Ferguson E, Shichman R, Tan JH. When lone wolf defectors undermine the power of the opt-out default. Scientific Reports. 2020;10(1):8973. doi:10.1038/s41598-020-65163-1

Miller J, Currie S, McGregor LM, O'Carroll RE. 'It's like being conscripted, one volunteer is better than 10 pressed men': A qualitative study into the views of people who plan to opt-out of organ donation. British Journal of Health Psychology. 2020;25(2):257-274. doi:10.1111/bjhp.12406

Moloney G, Sutherland M, Bowling A, Upcroft L, Jagdish PP, Walker I, Norton M. Don't forget the context when you are talking about organ donation: Social representations shared mood and behaviour. Journal of Community and Applied Social Psychology. 2020;30(6):645-659. doi:10.1002/casp.2474

Moloney G, Upcroft L, Rienks S, Sutherland M, Bowling A, Walker I. Respect, Interaction, and Immediacy: Addressing the Challenges Associated With the Different Religious and Cultural Approaches to Organ Donation in Australia. Experimental and Clinical Transplantation. 2020;18(Suppl. 2):43-53. doi:10.6002/ect.rlgnsymp2020.L7

Sutherland M, Moloney G, Norton M, Bowling A, Walker I. Utilizing a hospital-based setting to increase organ donor registrations. Transplantation. 2020;104(6):1210-1214. doi:10.1097/TP.0000000000002981

Thyagarajan I, Shroff S, Vincent BP, Rajendran J, Kanvinde H, Shankar S, Aneesh K. Knowledge and practice of organ donation among police personnel in Tamil Nadu: A cross-sectional study. Indian Journal of Transplantation. 2020;14(2):141. doi:10.4103/ijot.ijot_56_19

Vincent BP, Randhawa G, Cook E. Barriers towards organ donor registration and consent among people of Indian origin living globally: a systematic review and integrative synthesis—protocol. BMJ open. 2020;10(6):e035360. doi:10.1136/bmjopen-2019-035360

 

2019

Alex A, Shroff S, Vincent BP, Navin S, Ramesh P, Michael J, Menon S. Did an increase in knowledge and awareness about organ donation improve organ donation rate in India over the past two decades?. Indian Journal of Transplantation. 2019;13(3):173. doi:10.4103/ijot.ijot_68_18

Doyle F, Morgan K, Mathew M, Palatty P, Kamat P, Doherty S, Quigley J, Henderson J, O’Carroll R. Theory content, question-behavior effects, or form of delivery effects for intention to become an organ donor? Two randomized trials. International Journal of Environmental Research and Public Health. 2019;16(7):1304. doi:10.3390/ijerph16071304

Ferguson E, Murray C, O'Carroll RE. Blood and organ donation: health impact, prevalence, correlates, and interventions. Psychology & Health. 2019;34(9):1073-1104. doi:10.1080/08870446.2019.1603385

Ferguson E, Zhao K, O'Carroll R, Smillie LD. Costless and costly prosociality: correspondence among personality traits, economic preferences, and real-world prosociality. Social Psychological and Personality Science. 2019;10(4):461-471. doi:10.1177/1948550618765071

Miller J, Currie S, O'Carroll RE. 'If I donate my organs it's a gift, if you take them it's theft': a qualitative study of planned donor decisions under opt-out legislation. BMC Public Health. 2019;19:1463. doi:10.1186/s12889-019-7774-1

Miller J, Currie S, O'Carroll RE. 'What if I'm not dead?' - Myth-busting and organ donation. British Journal of Health Psychology. 2019;24(1):141-158. doi:10.1111/bjhp.12344

Moloney G, Sutherland M, Norton M, Bowling A, Walker I. Increasing registrations on the Australian Organ Donor Register. Letter to the Editor.  Medical Journal of Australia. 2019;210(3):143. doi:10.5694/mja2.50000

Moloney G, Sutherland M, Norton M, Walker I. When is the gift given? Organ Donation, social representations and an opportunity to register. Journal of Community and Applied Social Psychology. 2019;29(3):207-221. doi:10.1002/casp.2395

O 'Carroll RE, Quigley J, Miller CB. The effect of reciprocity priming on organ donor registration intentions and behavior. Annals of Behavioral Medicine. 2019; 53(6):592-595. doi:10.1093/abm/kay060

Siegel JT, Blazek, DR, McManus MD, Alvaro EA, Crano WD. It's all relative: Increasing organ donor registration intentions by maximizing family-relevant vested interest. Journal of Health Psychology. 2019. doi:10.1177/1359105319845130

Vincent BP, Kumar G, Parameswaran S, Kar SS. Barriers and suggestions towards deceased organ donation in a government tertiary care teaching hospital: qualitative study using socio-ecological model framework. Indian Journal of Transplantation. 2019;13(3):194. doi:10.4103/ijot.ijot_9_19

Vincent BP, Kumar G, Parameswaran S, Kar SS. Knowledge, attitude, and perception on organ donation among undergraduate medical and nursing students at a tertiary care teaching hospital in the southern part of India: A cross-sectional study. Journal of Education and Health Promotion. 2019;8:161. doi:10.4103/jehp.jehp_439_18

 

2018

Blazek DR, Siegel JT. The value of being discrete: the differential and causal effects of positive affect and discrete positive emotions on organ donor registration outcomes. Applied Psychology: Health and Well Being. 2018;10(3):481-503. doi:10.1111/aphw.12134

 
2017

Doherty S, Dolan E, Flynn J, O'Carroll R, Doyle F. Circumventing the "Ick" factor: A randomized trial of the effects of omitting affective attitudes questions to increase intention to become an organ donor. Frontiers in Psychology. 2017;8:1443. doi:10.3389/fpsyg.2017.01443

Merz E‐M, van Den Hurk K, de Kort, WLAM. Organ donation registration and decision-making among current blood donors in the Netherlands. Progress in Transplantation. 2017;27(3):266–272. doi:10.1177/1526924817715470

Moloney G, Hayman J, Gamble M, Smith G, Hall R. Translation strategies, contradiction  and the theory of social representations: why discussing needles may improve blood donor retention. British Journal of Social Psychology. 2017;56:393-415. doi:10.1111/bjso.12187

O'Carroll RE, Haddow L, Foley L, Quigley J. If you needed an organ transplant would you have one? The effect of reciprocity priming and mode of delivery on organ donor registration intentions and behaviour. British Journal of Health Psychology. 2017;22(3):577-588. doi:10.1111/bjhp.12248

 
2016

Moloney G, Jedrzejczyk C, Hall R. (2016) Thêmata et représentations sociales in Monaco GL, Delouvée S, Rateau P. (Eds) Les représentations sociales: Théories, méthodes et applications: Bruxelles: De Boeck Superieur.

O’Carroll RE, Shepherd L, Hayes PC, Ferguson E. Anticipated regret and organ donor registration: a randomized controlled trial. Health Psychology. 2016;35(11):1169–1177. doi:10.1037/hea0000363

Sharpe E, Moloney G, Sutherland M, Judd A. The power of an immediate donor registration opportunity: translating organ donation attitudes into registration behavior. Basic and Applied Social Psychology. 2017;39(1):49-59. doi:10.1080/01973533.2016.1249792

Siegel JT, Alvaro EM, Tan CN, Navarro MA, Garner LR, Jones SP. The potential (f)utility of a passive organ donor registration opportunity: a conceptual replication. Progress in Transplantation. 2016;26(2):103-108. doi:10.1177/1526924816641814

Siegel JT, Tan CN, Rosenberg BD, Navarro MA, Thomson AL, Lyrintzis EA, Alvaro EM, Jones ND. Anger, frustration, boredom and the Department of Motor Vehicles: Can negative emotions impede organ donor registration? Social Science & Medicine. 2016;153:174-181. doi:10.1016/j.socscimed.2016.02.013

 
2015

Siegel JT, Navarro MA, Thomson AL. The impact of overtly listing eligibility requirements on MTurk: An investigation involving organ donation, recruitment scripts, and feelings of elevation. Social Science & Medicine. 2015;142:256-260. doi:10.1016/j.socscimed.2015.08.020

 

CLASSIC PAPERS

Hyde MK, White KM. Perceptions of organ donors and willingness to donate organs upon death: a test of the prototype/willingness model. Death Studies. 2014;38(7):459-464. doi:10.1080/07481187.2013.783350

McGregor LM, Dickson A, Flowers P, Hayes PC, O'Carroll R. Reclaiming their lives: The decision-making process in living liver donation - An interpretative phenomenological case study analysis of one couple. Psychology and Health. 2014;29(12):1373-1387. doi:10.1080/08870446.2014.940950

Shepherd L, O'Carroll R. Do affective attitudes predict organ donor registration? a prospective study. Journal of Health Psychology. 2014;19(10):1329-1333. doi:10.1177/1359105313488984

Shepherd L, O'Carroll R. When do next-of-kin opt-in? anticipated regret, affective attitudes and donating deceased family member’s organs. Journal of Health Psychology. 2014;19(12):1508-1517. doi:10.1177/1359105313493814

Shepherd L, O’Carroll RE, Ferguson E. An international comparison of deceased and living organ donation/transplant rates in opt-in and opt-out systems: a panel study. BMC Medicine. 2014;12(1):131. doi:10.1186/s12916-014-0131-4

Siegel JT, Navarro MA, Tan CN, Hyde MK. Attitude–behavior consistency, the principle of compatibility, and organ donation: A classic innovation. Health Psychology. 2014;33(9):1084-1091. doi:10.1037/hea0000062

Hyde MK. (2013). Understanding decisions to communicate organ donation wishes: A narrative review. Organ Donation and Transplantation – An Interdisciplinary Approach. Edited by M. A. LauriNew York, NY United States: Nova Science Publishers. pp. 63-89. ISBN 9781629482606. Copy available from the author.

Hyde MK, Knowles SR, White KM. Donating blood and organs: using an extended theory of planned behavior perspective to identify similarities and differences in individual motivations to donate. Health Education Research. 2013;28(6):1092-1104. doi:10.1093/her/cyt078

Hyde MK, White KM. A test of three interventions to promote people's communication of their consent for organ donation. Psychology & Health. 2013;28(4):399-417. doi:10.1080/08870446.2012.731060

Moloney G, Walker I, Charlton T.  (2013). 'I do but don't...The yes, but factor in organ donation and transplantation', in MA Lauri (ed.), Organ donation and transplantation: an interdisciplinary approach, Nova Science, New York, pp. 141-150.

Shepherd L, O'Carroll R. Awareness of legislation moderates the effect of opt-out consent on organ donation intentions. Transplantation. 2013;95(8):1058-1063. doi:10.1097/TP.0b013e318284c13f

Siegel JT. Illuminating the psychological processes associated with renal failure diagnosis and living donation considerations: An application of Goal Disruption Theory. 2013: In Lauri, M. (Ed.), Organ Donation and Transplantation – An Interdisciplinary Approach (pp. 117-140). 

Siegel JT, Alvaro EM. Bone marrow donation and non-living organ donation: Thoughts inspired by Dr. Ambady’s search for a bone marrow donor.  The Forward (Society for the Psychological Study of Social Issues). 2013;248:10-13.

Hyde MK, Wihardjo KR, White KM. Do the myths still exist? Revisiting people’s negative beliefs about organ donation upon death. Psychology, Health & Medicine. 2012;17(5):530-541. doi:10.1080/13548506.2011.647698

McGregor LM, Ferguson E, O’Carroll RE. Living organ donation: the effect of message frame on an altruistic behaviour. Journal of Health Psychology. 2012;17(6):821–832. doi:10.1177/1359105311423862

O'Carroll RE, Ferguson E, Hayes PC, Shepherd L. Increasing organ donation via anticipated regret (INORDAR): protocol for a randomised controlled trial. BMC Public Health. 2012;12:169. doi:10.1186/1471-2458-12-169

Alvaro EM, Siegel JT, Jones SP. Increasing organ donor registration rates by providing an immediate and complete registration opportunity: an experimental assessment of the IIFF model. Psychology, Health & Medicine. 2011;16(6):686-694. doi:10.1080/13548506.2011.564353

Hyde MK, White KM. A comparison of registered and unregistered organ donors’ perceptions about transplant recipients. Clinical Transplantation. 2011;25(3):444-449. doi:10.1111/j.1399-0012.2010.01257.x

O'Carroll RE, Dryden J, Hamilton-Barclay T, Ferguson E. Anticipated regret and organ donor registration—A pilot study. Health Psychology. 2011;30(5):661. doi:10.1037/a0024182

O'Carroll RE, Foster C, McGeechan G, Sandford K, Ferguson E. The “ick” factor, anticipated regret, and willingness to become an organ donor. Health Psychology. 2011;30(2):236–245. doi:10.1037/a0022379

Alvaro EM, Siegel JT. A review and synthesis of organ donation media campaigns. Understanding Organ Donation Applied Behavioral Science Perspectives. Chichester, UK: John Wiley & Sons. 2010 pp:41-63.

Alvaro EM, Siegel JT, Crano WD, Dominick A. A mass mediated intervention on Hispanic live kidney donation. Journal of health communication. 2010;15(4):374-387. doi:10.1080/10810731003753133

Hyde MK, White KM. Are organ donation communication decisions reasoned or reactive? A test of the utility of an augmented theory of planned behaviour with the prototype/willingness model. British Journal of Health Psychology. 2010;15(2):435-452. doi:10.1348/135910709X468232

Hyde MK, White KM. Exploring donation decisions: beliefs and preferences for organ donation in Australia. Death Studies. 2010;34(2):172-185. doi:10.1080/07481180903492604

McGregor LM, Swanson V, Hayes PC, Forsythe JR, O'Carroll R. Considering adult living donor liver transplantation: a qualitative study of patients and their potential donors. Psychology and Health. 2010;25(6):751-766. doi:10.1080/08870440902822921

Siegel JT, Alvaro EM. Understanding Organ Donation Applied Behavioral Science Perspectives. Chichester, UK: John Wiley & Sons. 2010.

Siegel JT, Alvaro EM, Crano WD, Gonzalez AV, Tang JC, Jones SP. Passive-positive organ donor registration behavior: A mixed method assessment of the IIFF Model. Psychology, Health & Medicine. 2010;15(2):198-209. doi:10.1080/13548501003623922

Siegel JT, Alvaro EM, Hohman ZP. A dawning recognition of factors for increasing donor registration. Understanding Organ Donation Applied Behavioral Science Perspectives. Chichester, UK: John Wiley & Sons. 2010 pp:313-30.

Hyde MK, White KM. Similarity not favourability: The role of donor prototypes in predicting willingness to donate organs while living. Journal of Health Psychology. 2009;14(7):888-898. doi:10.1177/1359105309340990

Hyde MK, White KM. Communication prompts donation: Exploring the beliefs underlying registration and discussion of the organ donation decision. British Journal of Health Psychology. 2009;14(3):423-435. doi:10.1348/135910708X339542

Hyde MK, White KM. Disclosing donation decisions: the role of organ donor prototypes in an extended theory of planned behaviour. Health Education Research. 2009;24(6):1080-1092. doi:10.1093/her/cyp028

Hyde MK, White KM. Student and community perceptions about organ donors, non‐donors and transplant recipients. Journal of Community & Applied Social Psychology. 2009;19(2):125-141. doi:10.1002/casp.979

Hyde MK, White KM. To be a donor or not to be? Applying an extended theory of planned behavior to predict posthumous organ donation intentions. Journal of Applied Social Psychology. 2009;39(4):880-900. doi:10.1111/j.1559-1816.2009.00464.x

Alvaro EM, Siegel JT, Turcotte D, Lisha N, Crano WD, Dominick A. Living kidney donation among Hispanics: a qualitative examination of barriers and opportunities. Progress in transplantation. 2008;18(4):243-250. doi:10.1177/152692480801800406

McGregor LM, Hayes PC, O'Carroll R. Living liver donation: Attitudes of the general public and general practitioners in Scotland. Psychology and Health. 2008;23(5):603-616. doi:10.1080/08870440701864512

Siegel JT, Alvaro EM, Crano WD, Lac A, Ting S, Jones SP. A quasi-experimental investigation of message appeal variations on organ donor registration rates. Health Psychology. 2008;27(2):170-178. doi:10.1037/0278-6133.27.2.170

Siegel JT, Alvaro EM, Lac A, Crano WD, Dominick A. Intentions of becoming a living organ donor among Hispanics: A theory-based approach exploring differences between living and nonliving organ donation. Journal of health communication. 2008;13(1):80-99. doi:10.1080/10810730701807142

Hyde MK, White KM. Young Australian adults' knowledge and beliefs about organ donation. Progress in Transplantation. 2007;17(3):220-227. doi:10.1177/152692480701700310

Alvaro EM, Jones SP, Robles AS, Siegel JT. Hispanic organ donation: impact of a Spanish-language organ donation campaign. Journal of the National Medical Association. 2006;98(1):28-35. PMID: 16532975

Alvaro EM, Jones SP, Robles AS, Siegel JT. Predictors of organ donation behavior among Hispanic Americans. Progress in Transplantation. 2005;15(2):149-156. doi:10.1177/152692480501500207

Moloney G, Hall R, Walker I. Social representations and themata: The construction and functioning of social knowledge about donation and transplantation. British journal of social psychology. 2005;44(3):415-441. doi:10.1348/014466605X42246

Siegel JT, Alvaro EM, Jones SP. Organ donor registration preferences among Hispanic populations: which modes of registration have the greatest promise?. Health Education & Behavior. 2005;32(2):242-252. doi:10.1177/1090198104272251

Moloney G, Walker I. Talking about transplants: Social representations and the dialectical, dilemmatic nature of organ donation and transplantation. British journal of social psychology. 2002;41(2):299-320. doi:10.1348/014466602760060264

Moloney G, Walker I. Messiahs, pariahs, and donors: The development of social representations of organ transplants. Journal for the Theory of Social Behaviour. 2000;30(2):203-227. doi:10.1111/1468-5914.00126

Exploring perceptions of opt-in and opt-out organ donation systems 

Professor Barbara Masser, Dr Mel Hyde, Professor Eamonn Ferguson

England is moving to a soft opt-out organ donation system as of April 1, 2020 and it is likely that debate about Australia's organ donation system will reignite as to whether Australia should also move to an opt-out system. We plan to undertake an in-depth exploration of the current understanding of and attitudes towards organ donation systems amongst members of the general Australian community in order to provide key information for organ donation stakeholders, policy makers, and health professionals, in the event that changes in Australia's organ donation system are considered or come into effect in the future.

 

ORGAN DONATION AND PSYCHOLOGICAL CONTRACTS: MECHANISMS OF TRUST IN THE MEDICAL SYSTEM

Amie Brook, Dr Mel Hyde, Professor Barbara Masser

People from ethnic minority groups are particularly affected by organ shortages due to fewer available blood/tissue compatible organ transplants. They are less likely to consent to donation, more likely to be wait-listed indefinitely, or die before receiving a transplant, than non-minority populations. Organ donation campaigns attempt to increase donor diversity by suggesting that donations from minority groups will go to minority group recipients. Consequently, campaigns may promote unrealistic expectations, reduce trust in medical/donation systems and willingness to donate. In two main studies, we explored Australian’s trust and donation-related willingness when expectations/outcomes around who receives organ transplants vary, particularly when participants are in a group who receive less transplants (minority-sized group). We expected that participants in minority-sized groups who don’t have expectations met regarding transplant recipients would have less trust in medical/donation systems and less willingness to donate. This research offers some preliminary insights to help refine strategies adopted in donation campaigns targeting minority groups. A summary of the project is available here.

Donor Grant Materials: Increasing organ donor registration at New Mexico Motor Vehicle Departments

This website makes available the materials used in Prof Jason Siegel and colleague's research on increasing donor registration at New Mexico Motor Vehicle Departments. 

 

DRREAM: DONATION, REGISTRATION, RESEARCH, EDUCATION, AWARENESS

Read about the impact of Assoc Prof Gail Moloney and team's research on increasing registrations on the Australian Organ Donor Register.