{"id":12055,"date":"2022-06-13T14:01:46","date_gmt":"2022-06-13T04:01:46","guid":{"rendered":"https:\/\/research.psy.uq.edu.au\/dorn\/?p=12055"},"modified":"2022-06-13T14:01:50","modified_gmt":"2022-06-13T04:01:50","slug":"blood-cancer-patients-are-dying-waiting-for-their-stem-cell-match","status":"publish","type":"post","link":"https:\/\/research.psy.uq.edu.au\/dorn\/blood-cancer-patients-are-dying-waiting-for-their-stem-cell-match\/","title":{"rendered":"Blood cancer patients are dying waiting for their stem cell match"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"12055\" class=\"elementor elementor-12055\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-d11a6b5 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"d11a6b5\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-95a076c\" data-id=\"95a076c\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-a966b3d elementor-widget elementor-widget-spacer\" data-id=\"a966b3d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-656d10b elementor-widget elementor-widget-heading\" data-id=\"656d10b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-xl\"><b>Blood cancer patients<\/b><\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f55ee5a elementor-widget elementor-widget-heading\" data-id=\"f55ee5a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-xl\"><b> are <\/b><b>dying waiting<\/b><\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-19e5bda elementor-widget elementor-widget-heading\" data-id=\"19e5bda\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">for their stem cell match<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-c317417 animated-slow elementor-invisible elementor-widget elementor-widget-heading\" data-id=\"c317417\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\"><br>By Pamela Bousejean, UR the Cure Founder<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-0bb530e elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"0bb530e\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-a596dd0\" data-id=\"a596dd0\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-7565bfc elementor-widget elementor-widget-spacer\" data-id=\"7565bfc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-fd28d5f elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"fd28d5f\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-66 elementor-top-column elementor-element elementor-element-8eab134\" data-id=\"8eab134\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-7539d80 elementor-widget elementor-widget-text-editor\" data-id=\"7539d80\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>When Matt \u201cBiff\u201d Thompson\u2019s Mum needed a blood stem cell transplant to cure her cancer, he did not hesitate to join the blood stem cell donor registry in the hope that he could maybe save someone\u2019s life one day too.\u00a0<\/p><p>\u00a0<\/p><p>However, he was shocked that it wasn\u2019t a particularly easy process and after realising that there was a better way to join through the use of mouth cheek swabs, he was determined to make sure that Australia changed the way we recruit blood stem cell donors.\u00a0<\/p><p>\u00a0<\/p><p>Biff has recently completed \u201cThe 2050\u201d, an incredible feat that saw him run 50km every day for 20 days to raise awareness on this important issue! Why \u201c20-50\u201d? Because we need 20,000 people per year to join the stem cell donor registry for the 50 people who are diagnosed with blood cancer every day.\u00a0<\/p><p>\u00a0<\/p><p>To support Biff, he is asking everyone to email our health minsters about this important issue and sign the petition (links found below and QR codes available on the\u00a0<a href=\"https:\/\/research.psy.uq.edu.au\/dorn\/wp-content\/uploads\/2022\/06\/Cheek-Swabs-Fact-Sheet.pdf\" target=\"_blank\" rel=\"noopener\">fact sheet<\/a>).<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-390a3c9\" data-id=\"390a3c9\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-f30ca89 elementor-widget elementor-widget-image\" data-id=\"f30ca89\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t<figure class=\"wp-caption\">\n\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"707\" height=\"942\" src=\"https:\/\/research.psy.uq.edu.au\/dorn\/wp-content\/uploads\/2022\/06\/Biffrunner-e1654494816546.jpg\" class=\"attachment-large size-large wp-image-12043\" alt=\"\" srcset=\"https:\/\/research.psy.uq.edu.au\/dorn\/wp-content\/uploads\/2022\/06\/Biffrunner-e1654494816546.jpg 707w, https:\/\/research.psy.uq.edu.au\/dorn\/wp-content\/uploads\/2022\/06\/Biffrunner-e1654494816546-225x300.jpg 225w, https:\/\/research.psy.uq.edu.au\/dorn\/wp-content\/uploads\/2022\/06\/Biffrunner-e1654494816546-615x819.jpg 615w\" sizes=\"(max-width: 707px) 100vw, 707px\" \/>\t\t\t\t\t\t\t\t\t\t\t<figcaption class=\"widget-image-caption wp-caption-text\">@Biffrunner ran 50km every day for 20 days to raise awareness and bring cheek swab testing into Australia<\/figcaption>\n\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-afb7e9a elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"afb7e9a\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-962038a\" data-id=\"962038a\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-0449086 elementor-widget elementor-widget-text-editor\" data-id=\"0449086\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>I have been advocating to implement cheek swabs in Australia for many years now along with thousands of supporters through my charity \u201c<a href=\"https:\/\/www.urthecure.com.au\/\" target=\"_blank\" rel=\"noopener\">UR the Cure<\/a>\u201d. We are a partner of the Australian Bone Marrow Donor Registry\u2019s (AMBDR) <a href=\"https:\/\/strengthtogive.org.au\/\" target=\"_blank\" rel=\"noopener\">Strength to Give<\/a> cheek swab program. My life was saved by a stem cell transplant and UR the Cure\u2019s goals are to increase the numbers and diversity of people joining the donor registry to find more lifesaving stem cell matches for blood cancer patients. Without cheek swabs this is a near impossible task.<\/p><p>\u00a0<\/p><p>At the end of last year, the government released the PWC report of the review undertaken of the HPC (Transplant) Sector that took 4 years to complete.\u00a0 As a result of the review the <a href=\"https:\/\/www.health.gov.au\/resources\/publications\/national-haemopoietic-progenitor-cell-hpc-framework\" target=\"_blank\" rel=\"noopener\">National HPC Framework<\/a> was formed. UR the Cure wrote a submission to this review back in 2017 with a number of recommendations; one being to implement the use of cheek swab testing.<\/p><p>\u00a0<\/p><p>The <a href=\"https:\/\/www.health.gov.au\/resources\/publications\/national-haemopoietic-progenitor-cell-hpc-framework\" target=\"_blank\" rel=\"noopener\">National HPC Framework<\/a> outlines the problems caused by our dependence on overseas stem cell donors and that improving the donor pool is a priority.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-099a303 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"099a303\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-d08f23e\" data-id=\"d08f23e\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-7990482 elementor-widget elementor-widget-spacer\" data-id=\"7990482\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-dc50a07 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"dc50a07\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-cce5fd7\" data-id=\"cce5fd7\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-85710eb elementor-widget elementor-widget-heading\" data-id=\"85710eb\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-large\"><b><i>However, the National HPC framework did not provide a solution or a commitment to increasing donor recruitment.<\/i><\/b><\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-60fd4e9 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"60fd4e9\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-de94e78\" data-id=\"de94e78\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-08bb82b elementor-widget elementor-widget-spacer\" data-id=\"08bb82b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-c596217 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"c596217\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-4fa2f0d\" data-id=\"4fa2f0d\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-82ff56d elementor-widget elementor-widget-text-editor\" data-id=\"82ff56d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>In response to this report, UR the Cure wrote a letter to the Federal government (both the acting and shadow health ministers) and to State governments, and posed 3 main questions:<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-c2d8dc7 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"c2d8dc7\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-0d5eec4\" data-id=\"0d5eec4\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-66 elementor-top-column elementor-element elementor-element-7797b97\" data-id=\"7797b97\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-2c24537 elementor-widget elementor-widget-text-editor\" data-id=\"2c24537\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<ul><li>If Strength to Give cheek swab testing is not the solution, then what does your government propose the solution to be?\u00a0\u00a0<\/li><li>In what timeframes can the solution be implemented?<\/li><li>What are your government\u2019s hesitancies in moving forward with the Strength to Give model?<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-ed29b1d elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"ed29b1d\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-f6c496b\" data-id=\"f6c496b\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-7356759 elementor-widget elementor-widget-text-editor\" data-id=\"7356759\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Our confidence in the Strength to Give cheek swab program comes from the results of an independent review completed by the INCA consulting group that showed that the Strength to Give cheek swab program was a success. ABMDR has also provided documents to government showing the viability of the program.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-0516db3 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"0516db3\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-71b80a0\" data-id=\"71b80a0\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-c9b819a elementor-widget elementor-widget-text-editor\" data-id=\"c9b819a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>The governments\u2019 response to our questions is that they are committed to improving Australia\u2019s donor pool but that a review needs to be undertaken of the Strength to Give cheek swab program and recruitment methods before a decision can be made. UR the Cure is not satisfied with this response, especially since the last review took over 4 years to complete. We currently have no timelines provided for when the next review will complete or, more critically, when a solution will be implemented.\u00a0<\/p><p><strong>\u00a0<\/strong><\/p><p><strong>In the meantime, Australians may die waiting for their stem cell match<\/strong>.<\/p><p>\u00a0<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-b62d21c elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"b62d21c\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-506a0c5\" data-id=\"506a0c5\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-4f83575 elementor-widget elementor-widget-text-editor\" data-id=\"4f83575\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>UR the Cure appreciates the complexity of large-scale health care change, but we know in this context Strength to Give cheek swab testing is (at least part of) the answer.\u00a0 Unusually, it appears that money is available. The latest ABMDR public <a href=\"https:\/\/www.abmdr.org.au\/abmdr\/annual-reports\/\" target=\"_blank\" rel=\"noopener\">financial reports<\/a> show sufficient funds to implement a 5-year recruitment program immediately through cheek swabs.\u00a0<\/p><p>\u00a0<\/p><p>However, this is prevented through Commonwealth-imposed contractual constraints, and at a Federal level change needs to occur to allow AMBDR to access that money. This money from the cord blood stem cell sector has been sitting <a href=\"https:\/\/www.abmdr.org.au\/abmdr\/annual-reports\/\" target=\"_blank\" rel=\"noopener\">unused<\/a> for 20 years and we believe it is time to put it to good use!\u00a0<\/p><p>\u00a0<\/p><p>Financially and contractually, we know that a cheek swab program is possible and we believe it the most effective way to grow the stem cell donor registry to meet the needs of the 50 Australians diagnosed with blood cancer every single day.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-d744b72 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"d744b72\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-3bf0de9\" data-id=\"3bf0de9\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-2eedaf9 elementor-widget elementor-widget-spacer\" data-id=\"2eedaf9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-3860368 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"3860368\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-80f5fc5\" data-id=\"80f5fc5\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-9d7f80f elementor-widget elementor-widget-heading\" data-id=\"9d7f80f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-large\"><b><i>Help us let the Australian governments know that this is what people want!<\/i><\/b><\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-81923c8 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"81923c8\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-8aa2f80\" data-id=\"8aa2f80\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-a2e1099 elementor-widget elementor-widget-spacer\" data-id=\"a2e1099\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-35f2627 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"35f2627\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-1787efe\" data-id=\"1787efe\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-5553f41 elementor-widget elementor-widget-heading\" data-id=\"5553f41\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">How you can help<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-5f31a07 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"5f31a07\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-6cfbfe0\" data-id=\"6cfbfe0\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-25581c2 elementor-widget elementor-widget-text-editor\" data-id=\"25581c2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Please support our campaign by emailing our Health Ministers (<a href=\"http:\/\/www.urthecure.com.au\/letters\" target=\"_blank\" rel=\"noopener\">letter templates<\/a>) and signing a <a href=\"https:\/\/www.change.org\/p\/australian-federal-government-want-to-save-a-life-government-says-no?fbclid=IwAR2aophcRVJ6w9feeqnqZPoN8S3Bamk2rpGv1z9S81EqvNlUsTwMr898pPU&amp;recruited_by_id=d796ba30-7af0-11e9-8a46-297db3a18391&amp;recruiter=963058444&amp;utm_campaign=petition_dashboard&amp;utm_medium=copylink&amp;utm_source=share_petition\" target=\"_blank\" rel=\"noopener\">Change.org petition<\/a>\u00a0<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-c0d7c9e\" data-id=\"c0d7c9e\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-f79a9f3 elementor-widget elementor-widget-text-editor\" data-id=\"f79a9f3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>More information can be found at <a href=\"http:\/\/www.urthecure.com.au\/advocacy\">www.urthecure.com.au\/advocacy<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-745441b\" data-id=\"745441b\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-58e6b48 elementor-widget elementor-widget-text-editor\" data-id=\"58e6b48\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Follow us on social media @urthecure and see @Biffrunner for his #The2050 journey<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-b3e8c74 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"b3e8c74\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-8f86757\" data-id=\"8f86757\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-176127d elementor-widget elementor-widget-spacer\" data-id=\"176127d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-28ef033 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"28ef033\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-0b939e7\" data-id=\"0b939e7\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-5029f56 elementor-widget elementor-widget-heading\" data-id=\"5029f56\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\"><span style=\"font-family: Roboto, sans-serif;font-size: 24px;font-style: normal;font-weight: 600\">About the Author<\/span><\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-9841648 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"9841648\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-deaa138\" data-id=\"deaa138\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-38e4ab7 elementor-widget elementor-widget-image\" data-id=\"38e4ab7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"150\" height=\"150\" src=\"https:\/\/research.psy.uq.edu.au\/dorn\/wp-content\/uploads\/2019\/10\/Pamela-Bousejean-150x150.jpg\" class=\"attachment-thumbnail size-thumbnail wp-image-680\" alt=\"\" srcset=\"https:\/\/research.psy.uq.edu.au\/dorn\/wp-content\/uploads\/2019\/10\/Pamela-Bousejean-150x150.jpg 150w, https:\/\/research.psy.uq.edu.au\/dorn\/wp-content\/uploads\/2019\/10\/Pamela-Bousejean.jpg 200w\" sizes=\"(max-width: 150px) 100vw, 150px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-604f8a9 elementor-widget elementor-widget-text-editor\" data-id=\"604f8a9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p><strong>Pamela Bousejean<\/strong><\/p><p><span style=\"font-family: Roboto, sans-serif; font-size: 16px; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-weight: 300;\">Pamela Bousejean is the Founder of UR the Cure, a registered charity with the ACNC (Australian Charities and Not For Profits Commission) that is run completely by volunteers. UR the Cure was founded in 2015 by Pamela who had Hodgkins Lymphoma (a type of blood cancer) and her personal experience in struggling to find a stem cell match to cure her cancer. UR the Cure is an official partner of the Australian Bone Marrow Donor Registry (ABMDR) who run the &#8220;Strength to Give&#8221; cheek swab program.<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-e207aae\" data-id=\"e207aae\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-ee9885d elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"ee9885d\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-3b6bc2b\" data-id=\"3b6bc2b\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-7152d44 elementor-widget elementor-widget-spacer\" data-id=\"7152d44\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-850716a elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"850716a\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-8658107\" data-id=\"8658107\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Blood cancer patients are dying waiting for their stem cell match By Pamela Bousejean, UR the Cure Founder When Matt \u201cBiff\u201d Thompson\u2019s Mum needed a &hellip;<\/p>\n","protected":false},"author":4,"featured_media":12043,"comment_status":"open","ping_status":"open","sticky":true,"template":"elementor_header_footer","format":"standard","meta":{"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[11],"tags":[],"class_list":["post-12055","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blog"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.3 - 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